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Type title here... http://alexisjohnson.net/documents/blog.php Type description here... en-us Tue, 07 Sep 2010 00:32:56 -0500 Tue, 07 Sep 2010 00:32:56 -0500 http://blogs.law.harvard.edu/tech/rss www.ezgenerator.com Osteo Warriors of 2008 http://alexisjohnson.net/documents/blog.php?entry_id=1283831964 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1283831964"><img src="http://alexisjohnson.net/blog/php/DSC00735.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> Osteosarcoma survivors, Vince, Alexis and Ty(from Idaho) . All were diagnosed in 2008 and we had a first time meeting but the crazy  Moms were all long time cyber-BFF's.... It was a great night and Ty choose amputation, so he was a wealth of info for Alexis... Amazing kids with beautiful smiles, who would of thought the battle they fight.... September is Childhood Cancer Awareness Month.. Less than 3% goes to research for these kids.... .. ... Family http://alexisjohnson.net/documents/blog.php?entry_id=1283831964&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1283831964 Tue, 07 Sep 2010 00:32:56 -0500 Surprise Birthday For Christian http://alexisjohnson.net/documents/blog.php?entry_id=1282950695 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1282950695"><img src="http://alexisjohnson.net/blog/php/friends%202010_1282950695.jpg" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> front row : Super Dad Todd,   Survivor Katelyn &   CHRISTIAN 14th B-day Back Row :Survivors Tate, Alexis, Sean & Vince Alexis & I had a surprise 14th B-day for Christian.. We have an awesome community that donated for our favorite family the Burns from El Cajon..... THANKs to Cully's Restaurant, Albertson's Poway, Syssco, We're Back Crew, Crystal Garden 's,   Santorini's grill, Magic Mike, Lady Erika face painting, Kim & Edna horse rides & Vinnie pool service.. Without ... Friends http://alexisjohnson.net/documents/blog.php?entry_id=1282950695&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1282950695 Sun, 29 Aug 2010 16:41:36 -0500 19 month SURVIVOR http://alexisjohnson.net/documents/blog.php?entry_id=1280037770 PET scan clean, but leg still not working..... I will take a NED(no evidence of disease) any day... Heading to amputation team appt. on the 27th July... Please keep us in your prayers..... Hugs Donna Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1280037770&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1280037770 Sun, 25 Jul 2010 01:02:50 -0500 CANCER SUCKS! http://alexisjohnson.net/documents/blog.php?entry_id=1276490026 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1276490026"><img src="http://alexisjohnson.net/blog/php/Picture%20234.jpg" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a>   I hate this disease. It is taking another one of my friends Christian... Please say any extra prayers for him and his family. He was diagnosed 1 month before me in 2008, he is 13yo and loosing his battle. Thirteen is just too young, he is so happy with the snake we gave him.... Lord help my friends find eternal peace in heaven and find one another...  We must find a cure.... Yaya Feelings http://alexisjohnson.net/documents/blog.php?entry_id=1276490026&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1276490026 Sun, 13 Jun 2010 23:42:37 -0500 Relay Warriors http://alexisjohnson.net/documents/blog.php?entry_id=1276489175 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1276489175"><img src="http://alexisjohnson.net/blog/php/DSC00356.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a>   Life for Cure for Kids had a new look I never dreamed would happen in 365 days. It is with great sadness that our team lost Caroline (12yo) & Grant (22yo) within 10days of relay... Andrew & I still stood strong and spoke again this year, how we missed our friends who spoke last year with us... The effects of chemo/cancer still takes its toll on both Andrew & mine, but WE WILL ... Friends http://alexisjohnson.net/documents/blog.php?entry_id=1276489175&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1276489175 Sun, 13 Jun 2010 23:45:04 -0500 Tourney Pix http://alexisjohnson.net/documents/blog.php?entry_id=1276488597 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1276488597"><img src="http://alexisjohnson.net/blog/php/DSC00347.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a>   Thank you to Kirk & family for a great senior project and fundraiser.. 2010 forever, wish I had walked with my friends, but this cancer has set me behind... But I will not stop fighting. Thank you to NBW for all the support of Kirk and making a great event.....  FIND A CURE..... Love: Yaya Friends http://alexisjohnson.net/documents/blog.php?entry_id=1276488597&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1276488597 Sun, 13 Jun 2010 23:44:01 -0500 Fishing tournament http://alexisjohnson.net/documents/blog.php?entry_id=1272552647         Hey everyone! Sorry I haven't posted in a while. I wanted to let everyone know that my friend Kirk for his senior project is doing a charity fishing tournament for me. It's going to be @ Lake Hodges on Sunday May 2nd. If you would like to fish it starts @ 500 am. If not if you like to come out @ 2:00 pm for a free bbq and see the weigh in for the biggest ... General http://alexisjohnson.net/documents/blog.php?entry_id=1272552647&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1272552647 Thu, 29 Apr 2010 10:43:46 -0500 Prom Pixs #2 http://alexisjohnson.net/documents/blog.php?entry_id=1272153575 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1272153575"><img src="http://alexisjohnson.net/blog/php/DSC00304.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> Friends http://alexisjohnson.net/documents/blog.php?entry_id=1272153575&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1272153575 Mon, 26 Apr 2010 17:57:59 -0500 Prom Pixs #1 http://alexisjohnson.net/documents/blog.php?entry_id=1272153095 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1272153095"><img src="http://alexisjohnson.net/blog/php/DSC00273.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> Friends http://alexisjohnson.net/documents/blog.php?entry_id=1272153095&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1272153095 Sat, 24 Apr 2010 18:55:38 -0500 Please Donate to Cure For Kids http://alexisjohnson.net/documents/blog.php?entry_id=1270265945 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1270265945"><img src="http://alexisjohnson.net/blog/php/DSC00240.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> It is that time again for Relay for life @ Lake Poway on May 15th and 16th.. We are team Cure for Kids. Please click on the link and donate to my sisters and I.... Love to all: Alexis, Tessa & Maris http://main.acsevents.org/site/TR?pg=team&fr_id=20511&team_id=649614 Friends http://alexisjohnson.net/documents/blog.php?entry_id=1270265945&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1270265945 Wed, 14 Apr 2010 22:25:14 -0500 Officially 2 Years! http://alexisjohnson.net/documents/blog.php?entry_id=1269654999 Officially  two long years since Alexis was diagnosed with osteosarcoma. It has really been a week of reflecting, celebrating, tears and more appointments. On the 23rd was when her tumor popped out, 24th a day @ Scripps RB, 25th admittance to Children's and 26th biopsy.. Our lives forever changing. But everyday I awake with my daughter in this world, I can never have a bad day, I can deal with anything. Finally hyperbaric work has ... Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1269654999&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1269654999 Mon, 19 Apr 2010 11:47:32 -0500 Happy Time 2 http://alexisjohnson.net/documents/blog.php?entry_id=1266904277 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1266904277"><img src="http://alexisjohnson.net/blog/php/wedding%20Feb.jpg" align="left" width="120px" height="80px" border="0" alt="" style="margin-right:2"></a> Maris, Me, Mom & Tessa . Family http://alexisjohnson.net/documents/blog.php?entry_id=1266904277&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1266904277 Thu, 04 Mar 2010 23:06:19 -0600 Happy Time http://alexisjohnson.net/documents/blog.php?entry_id=1266903952 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1266903952"><img src="http://alexisjohnson.net/blog/php/wedding%20them.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> Dad, Kelly, Tessa (13), Maris (11), Katelyn (2) and Me (17) @ my cousins wedding...Congrats Amy & Paul on your wedding, much happiness.... Love Yaya Family http://alexisjohnson.net/documents/blog.php?entry_id=1266903952&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1266903952 Thu, 04 Mar 2010 23:06:38 -0600 Good FRIENDS http://alexisjohnson.net/documents/blog.php?entry_id=1266284526 Lex has had a monster of a weekend. Kierstin/Shelby popped in and took her to a movie on Fri. night.. Shelby has a truck so the wheelchair is no problem. Then Saturday came back and took even Maris to the mall... It was lots of laughing,some new purchases and more laughing. Then for Valentines her good friend Harriet came for the night.. They have not seen each other for 5yrs, but jumped right back into ... Friends http://alexisjohnson.net/documents/blog.php?entry_id=1266284526&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1266284526 Thu, 04 Mar 2010 23:07:56 -0600 Down Pour http://alexisjohnson.net/documents/blog.php?entry_id=1264372573 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1264372573"><img src="http://alexisjohnson.net/blog/php/Jan2010%20067.jpg" align="left" width="120px" height="85px" border="0" alt="" style="margin-right:2"></a> It has been a down pour of rain here in Diego, the worst I have ever seen. And then after a day of doctor appts in the rain lead to a down pour of tears.. It has taken me a few days to collect my thoughts and attempt a post. Great news first: Started laser treatments 3x's a wk with Dr Specht in Encinitas to try and kill the infection that way. second: X-rays @ ... Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1264372573&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1264372573 Thu, 28 Jan 2010 09:42:02 -0600 The Battlefield http://alexisjohnson.net/documents/blog.php?entry_id=1263103156 This is an amazing nightmare ( would love to type F******). My back has finally given out from lifting the heavy wheelchair into the truck.. I have nursed it for the past week and it had enough last night.. I was so bad today, I cried for help.. Thank God Lex was sleeping, because I couldn't get up to give her the crutches.. Nicole came to save me, as I slept, but was here if ... Feelings http://alexisjohnson.net/documents/blog.php?entry_id=1263103156&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1263103156 Sat, 09 Jan 2010 23:59:16 -0600 Good Friends http://alexisjohnson.net/documents/blog.php?entry_id=1263017115 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1263017115"><img src="http://alexisjohnson.net/blog/php/friends%202010.jpg" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a>   Great friends, Grant, Kayla, Christina and Steven came over to have Friday  movie night with Lex.. They have been a huge support system to her through this 2year  journey.. It was pizza, snacks,candy and lots of laughter. They enjoyed the movie Hangover... Lex only got a little nausea after running her medicine in her PICC line, but she is a trooper like always.. It has been a rough start to a new ... Friends http://alexisjohnson.net/documents/blog.php?entry_id=1263017115&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1263017115 Sat, 09 Jan 2010 22:22:55 -0600 New Medicine http://alexisjohnson.net/documents/blog.php?entry_id=1261573945 The test finally came back from UCSD with the antibiotic that will kill the bacteria, it is Rocephin two times a day through her PICC line. I have just finished giving the morning dose.. Having issues with her PICC line, so we might have to make a trip into Children's today to have another one placed. But milestones are happening. Lex was able to get up on her crutches and get a shower. Her pain ... Feelings http://alexisjohnson.net/documents/blog.php?entry_id=1261573945&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1261573945 Sat, 09 Jan 2010 22:23:15 -0600 FINALLY HOME http://alexisjohnson.net/documents/blog.php?entry_id=1261287377 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1261287377"><img src="http://alexisjohnson.net/blog/php/100_0117.JPG" align="left" width="120px" height="90px" border="0" alt="" style="margin-right:2"></a> We made it home, but a list full of question marks. She is sleeping in her hospital bed in the living room, kitty's at her feet. Today a package was brought to her from my cousins in Rhode Island, Dan & Karen... It was a box full of Kitty things and a nice letter... She enjoyed it within her few moments of not sleeping.... This is driving me Crazier, emphases on the ER... We pray ... Family http://alexisjohnson.net/documents/blog.php?entry_id=1261287377&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1261287377 Sat, 09 Jan 2010 22:24:19 -0600 Stuck In Hospital http://alexisjohnson.net/documents/blog.php?entry_id=1261016497 Stuck in Children's Hospital, getting sick of this place after TWO YEARS. But we FINALLY recieved the information as to WHY the prosthesis is not staying attached to the bone. INFECTION, still collecting info, gathering info and very pissed off.   Yaya got a PICC line placed yesterday so her antibiotics can go in twice a day, with an unknown end date at this time.... To keep typing is just creating more anger for what my ... Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1261016497&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1261016497 Sat, 09 Jan 2010 22:25:03 -0600 Alexis' Thirds A Charm Surgery http://alexisjohnson.net/documents/blog.php?entry_id=1260594331 Alexis' pain is next to none ( which is a first for this surgery), she had a very long time in the operating room and then slept until about noon today. She is finally smiling (like always) and chatting. Exhausted from this process, but doing better so far.. More bone was removed and now the constant prays for the bone to grow into this prosthesis. Sorry for the delay, it has been non-stop and unable ... Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1260594331&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1260594331 Sat, 09 Jan 2010 22:25:29 -0600 Surgery Date http://alexisjohnson.net/documents/blog.php?entry_id=1259617552 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1259617552"><img src="http://alexisjohnson.net/blog/php/HPIM1303.JPG" align="left" width="120px" height="89px" border="0" alt="" style="margin-right:2"></a> Surgery is set for Thurs. Dec. 10th. My kittens are keeping watch over my leg and bring great amounts of entertainment for me... They were my 17th birthday gift from my Mom & sisters... The white on is Miss Cali and Cam is the gray one.. Please keep me in your prayers and after I see  Dr B, I will have more details.       Love: Yaya   Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1259617552&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1259617552 Sat, 09 Jan 2010 22:26:07 -0600 Prayer Request http://alexisjohnson.net/documents/blog.php?entry_id=1259132396 We have again started down the road of Alexis' leg failing. She is back on crutches and awaiting another major surgery #3  to save the leg. Please keep us in your prayers that over these next difficult weeks we can  get through another major surgery and the long recovery period. She is finally resting tonight after a bomb shell of a day.     Love & Happy Thanksgiving to all.. Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1259132396&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1259132396 Sat, 09 Jan 2010 22:26:35 -0600 Still Finding Our Way http://alexisjohnson.net/documents/blog.php?entry_id=1257127171 <a href="http://alexisjohnson.net/documents/blog.php?entry_id=1257127171"><img src="http://alexisjohnson.net/blog/php/photos_301.jpg" align="left" width="120px" height="80px" border="0" alt="" style="margin-right:2"></a>       S orry for the delay in posts. Our lives are always taking turns and twist's. Yaya is now 17, back in school and getting stellar grades. She has pain in her leg from being on it all day, but shes says the pain if worth it. She got her driver permit late Oct., so she is driving all over town. I am chaparoning a field trip to Knott's Berry Farm on the 6th, it ... Family http://alexisjohnson.net/documents/blog.php?entry_id=1257127171&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1257127171 Sat, 09 Jan 2010 22:27:01 -0600 Update on Yaya http://alexisjohnson.net/documents/blog.php?entry_id=1253590245      Hi everyone sorry I haven't wrote in a while. I am back in school finally. It feels wierd to be back to normal! I am doing good all my scans that I had done in August were clear. Which is awesome. Just alot of doctor checks but it's better than being on chemo and in the hospital. My family is doing good and so are my fellow osteos. Thank you for the prayers and support. ... General http://alexisjohnson.net/documents/blog.php?entry_id=1253590245&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1253590245 Sat, 09 Jan 2010 22:27:10 -0600 Port Removal Success http://alexisjohnson.net/documents/blog.php?entry_id=1246579981 Surgery success, ports (lines in her chest) have been removed. She is sore, but sleeping now... It has been nothing but a rollercoaster ride of emotions on this journey. Dr Bickler did a great job today, next week she will see Dr Willert & Dr Bowman for followup.. She has major scans again the first week of August,  say prayers for NED!   We will keep you updated. PLease continue prayers for Vince & Ty ... Doctors Report http://alexisjohnson.net/documents/blog.php?entry_id=1246579981&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1246579981 Sat, 09 Jan 2010 22:27:39 -0600 Excited for summer http://alexisjohnson.net/documents/blog.php?entry_id=1244852173     Hi all! I am so excited that it is summer. This weekend I am going to coach at state for my travel softball team. I am so excited to go an watch. I know I will soon be on the softball feild!!! On wednesday I am going to Long Beach for a camp called Sunshine Kids. I am so excited!!! We are going to Hollywood, Catalina and Long Beach. I got my itenery for my trip. ... General http://alexisjohnson.net/documents/blog.php?entry_id=1244852173&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1244852173 Sat, 09 Jan 2010 22:27:49 -0600 Hitting again http://alexisjohnson.net/documents/blog.php?entry_id=1244078361     Hey everyone sorry I haven't posted in a while! I am doing awesome. I am hitting again. I learning how to hit left handed because I can't hit right handed with my leg. Im excited for summer to come and to actually have a summer. Last weekend we had relay for life and as a community we raised 50,000. Can you believe it! Thank you to everyone who donated or went. This year i was able ... General http://alexisjohnson.net/documents/blog.php?entry_id=1244078361&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1244078361 Wed, 03 Jun 2009 20:19:21 -0500 Update on yaya http://alexisjohnson.net/documents/blog.php?entry_id=1239837186        Hey all! It's Yaya! Thank you again for all the love and support you guys have gave me this pass year. Hope everyone had a great Easter! I had the best Easter ever. My mom, sisters and I went to Poway Lake with softball friends. We played a pickup softball game against another family. I was hitting and pitching and no one got a hit of me lol!!! It was a lot of fun ... General http://alexisjohnson.net/documents/blog.php?entry_id=1239837186&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1239837186 Tue, 23 Jun 2009 14:54:07 -0500 Please Make A Donation To Our Team http://alexisjohnson.net/documents/blog.php?entry_id=1238710039 Hi All:           This will be our 2nd year of walking in the Relay for Life event May 30/31st @ Poway Lake. Our team is Cure for Kids and it is with three of my friends. My sisters & I are asking for donations to help the American Cancer Society. If you can help in anyway please click on our team web link http://main.acsevents.org/goto/cureforkids and make a donation to Alexis, Tessa or Maris. Thank you!   ... Friends http://alexisjohnson.net/documents/blog.php?entry_id=1238710039&comments=comments http://alexisjohnson.net/documents/blog.php?entry_id=1238710039 Sun, 05 Apr 2009 18:09:50 -0500